Week 24. Technically, yesterday was the end-of-treatment. J had his scans, which we learned results of later that evening. When we walked out the door, we weren't really celebrating, though. We were all kind of taken aback to discover his ANC below 500...so he has another appointment scheduled in 2 weeks for labwork...again. It was … Continue reading End of Treatment: Beating the Rhabdomyosarcoma Beast
What is there to say about WEEK 22 except.... LAST CHEMO TREATMENT - DONE! Happy dance! How did the day go? It was short, and the only reason we stayed as long as we did in clinic was that so J could do Art Therapy (the birds are all hanging on the glass window to the … Continue reading Last Chemo Treatment – DONE!
It's Week 21! Know what that means?!?! ONE MORE CHEMO LEFT! He ate his munchkins this morning. He didn't drag his feet going into the hospital, except to catch his Pokemon or stop at Pokestops. He walked into the clinic. He whined some about going to triage. He whined about going to the procedure room. … Continue reading Only One Chemo Left!
I don't know if I've said enough about this man who has overseen J's care these last 5 months. Getting J into the infusion area on Monday was a 4 hour process. He went directly to this conference room, the room in which we heard about his treatment plan in mid-May, and refused to move … Continue reading Almost made it to the end without a Transfusion
I wish I knew what it was about week 2 of each cycle for this half of treatment.... Another round in the ER last night. The good news: his temperature had come down by the time we made it to the ER which makes me think he slept through the worst of it during the … Continue reading Another Emergency Room Visit
WEEK 20! Of a 24 week roadmap! FIVE MONTHS DOWN. One to go! Even better, only TWO more treatment weeks. Moral of the story without sharing every tiny bit of it: anxiety sucks. I have no idea how a kid can puke so many times and still bring up....something. And I never knew that restraining … Continue reading Week 20 – The End of Chemo is Near
Week 19. 3 more treatments to go. Gosh, how I wish I could say that things are getting better, but...no. It didn't help showing up for an 8am appointment and finding that the nurses had a morning meeting which meant accessing didn't begin till nearly 9.... Kicking and screaming and puking and crying and fighting. … Continue reading Our Time Here is Almost Done: Cycle 7, Day 1 Treatment