Week 4 — the first treatment of Cycle 2 (of 6 cycles).

Yesterday. Even now, I’m not entirely sure what to say about it.

It was so…so…so freaking long. We left at 7:30am and finally were back at home at 9pm.

Weeks 1, 4, 7 & 10 are our super loooong treatment weeks. I was told 10-11 hour clinic days, and our oncologist was not joking in the slightest about that. Not in the slightest.

Ultimately, the reason for the length of these rounds is because of one single chemotherapy drug which requires J to meet blood count levels, to be super hydrated on IV fluids for ~2 hours prior to treatment (and reach certain urine pH/specific gravity levels), necessitates the administration of a chemoprotectant drug more than once (including 8 hours after that chemo med was administered) and requires IV fluids for that whole time to flush his kidneys & bladder to protect them, as well.

So…a long day. LOTS of medications. An enormous amount of time sitting…and waiting…and playing video games…and me wanting to just take a nap so the time would go quicker.

There was whining. There was puking. There was crying. There was….”I just want to go home”-ing. Even my strong kid eventually breaks, and these long days are the breaking point. On the plus side, his ANC rebounded like a freaking champ, and he’s back to ‘normal’…for at least this week.

But, hey, we get to see these pretty awesomely, cool glass-blown fish in CHKD’s lobby every week when we go for these insane (and the not-so-insane) treatment days.

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