He discovered in school today that his hair is falling out…….
At bedtime tonight, as he told me he didn’t want this to happen, I watched him touch his hair a few times and have a bunch of red strands litter his forehead and pillow. I’m vaguely scared to wake up in the morning and see his pillow…
This is when it becomes real. When the outward marker appears that distinguishes him and makes people look with pity because THEY KNOW without knowing the specifics.
Yes, I deal with this because I have no choice but to deal… My attitude about this circumstance means everything in our family. I could hide this journey from you all, but instead the decision we made is to share it. The good and the bad. The happy and the not so much.